Daily Routine With Hannah's feeding tube
Christina Paul
For those of you who ever wondered what it's like having a feeding tube, or what it means to live with a feeding tube, or for me, to be a complete caretaker of one with a 24/7 lifeline! Here is the basis of what it looks like.
I'm a mother who's on a journey to connect with others with Rare Genetic Disorders. To advocate and promote awareness. Scar9 and Autism is our life! Our daughter is case 1 in the US with SCAR9 and it's our mission to find more, and promote awareness!
I'm a mother who's on a journey to connect with others with Rare Genetic Disorders. To advocate and promote awareness. Scar9 and Autism is our life! Our daughter is case 1 in the US with SCAR9 and it's our mission to find more, and promote awareness!