Today marks 5 years since we received the diagnosis
we are now a Senior in her last year of school
Happy to say that the feeding tube is a thing of the past and this girl eats food! All kinds of food! She's thriving and communicating and to think we'd ever get to this point it purely a blessing! 4 years on a feeding tube and nothing by mouth to now - She eats everything!
When we first received the diagnosis I wasn't sure where the future would take us. Now I have a beautiful smart happy kiddo who loves to learn and be silly and the 22 different doctors are done. She has 2 and that's all we need. She'll be 18 in 5 short months and I couldn't be more proud of the young woman she has become