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https://images.squarespace-cdn.com/content/v1/560571cae4b0dce670622c76/1444836922634-N92I1R4GCH0TWQN5J98T/life__s_a_journey_by_vonstrago.jpg For my Readers https://www.ezramonet.com/home daily 1.0 2025-02-06 https://images.squarespace-cdn.com/content/v1/560571cae4b0dce670622c76/1456596935082-U157KZSMQHN75GJTFQFJ/image-asset.jpeg Scar9 A Mother's Journey Our story was featured in the Washington Post 2/16/16 https://images.squarespace-cdn.com/content/v1/560571cae4b0dce670622c76/1444834006431-OLVB0QDO7RHKCZT0SY0X/12164578_10207534956682458_53494055_o.jpg Scar9 A Mother's Journey https://images.squarespace-cdn.com/content/v1/560571cae4b0dce670622c76/1444833731222-4PLFESN8GVMUCMOYPK40/12168401_10207535062405101_866519872_o+%281%29.jpg Scar9 A Mother's Journey https://images.squarespace-cdn.com/content/v1/560571cae4b0dce670622c76/1443310033115-THS6ORBA3YUN3QREMWDM/0134782cc13f8ca3c52e9d0b6dfba318_instagram-storytelling.jpg Scar9 A Mother's Journey https://www.ezramonet.com/july-6th daily 0.75 2015-10-12 https://images.squarespace-cdn.com/content/v1/560571cae4b0dce670622c76/1444620155664-OVBD4H707DXKBRXXN8D4/image-asset.jpeg 2015 July 6th We leave for our Make A Wish and more https://www.ezramonet.com/july-27th-we-meet-with-pediatric-cardiologist daily 0.75 2015-10-10 https://images.squarespace-cdn.com/content/v1/560571cae4b0dce670622c76/1444495809433-7PYUXN2W1CYBCE6O6T6W/image-asset.jpeg 2015 July 27th We meet with pediatric Cardiologist https://images.squarespace-cdn.com/content/v1/560571cae4b0dce670622c76/1444496176318-Q9UC2DMVB6ABSHUEXO31/image-asset.jpeg 2015 July 27th We meet with pediatric Cardiologist https://images.squarespace-cdn.com/content/v1/560571cae4b0dce670622c76/1444495400617-B5U1YWH2IEYVX7U9S4PS/11800865_10206972848630108_979591092_o.jpg 2015 July 27th We meet with pediatric Cardiologist https://www.ezramonet.com/julu-14th-leaving-give-kids-the-world daily 0.75 2015-10-12 https://www.ezramonet.com/july-10th-hannahs-vip-with-cat-in-the-hat daily 0.75 2015-10-09 https://images.squarespace-cdn.com/content/v1/560571cae4b0dce670622c76/1444406694075-3ETVCQ4HPNDJN5MJYODH/image-asset.jpeg 2015 July 10th Hannah's VIP with Cat In The Hat https://www.ezramonet.com/july-29th-meeting-home-self-direction-program-opwdd daily 0.75 2015-10-10 https://www.ezramonet.com/august-5th-meet-with-dr-tovar-spinoza daily 0.75 2015-10-10 https://images.squarespace-cdn.com/content/v1/560571cae4b0dce670622c76/1444489593402-7IVMH4SZORITFG2O7NRL/tovarspz.jpg 2015 August 5th Meet with Dr. Tovar-Spinoza Pediatric Neurosurgery Dr. Zulma Tovar-Spinoza Neurosurgical Associates of Central New York Physicians' Office Building Suite 503, 725 Irving Ave Syracuse, NY 13210 315 464-4470 https://www.ezramonet.com/august-13th-muscle-biopsy-surgery daily 0.75 2015-10-10 https://images.squarespace-cdn.com/content/v1/560571cae4b0dce670622c76/1444487870159-6YT81BYISC49IKEBP9W4/image-asset.jpeg 2015 August 13th Muscle Biopsy Surgery https://www.ezramonet.com/august-20th-meet-with-pediatric-hemotology daily 0.75 2015-10-12 https://images.squarespace-cdn.com/content/v1/560571cae4b0dce670622c76/1444608258684-PMWS7BHPIW6112JKE2HQ/image-asset.jpeg 2015 August 20th Meet with Pediatric Hematology Andrea Dvorak https://images.squarespace-cdn.com/content/v1/560571cae4b0dce670622c76/1444608638502-12KZ1EQQNS3O2M7UZO18/12083701_10207478104581191_495466658_n.jpg 2015 August 20th Meet with Pediatric Hematology Andrea Dvorak https://images.squarespace-cdn.com/content/v1/560571cae4b0dce670622c76/1444608638316-IFSJ0LBMC4IONN04DLQI/12071684_10207478214783946_1879242449_n.jpg 2015 August 20th Meet with Pediatric Hematology Andrea Dvorak https://www.ezramonet.com/june-8th-wheelchair-evaluation daily 0.75 2015-10-10 https://images.squarespace-cdn.com/content/v1/560571cae4b0dce670622c76/1444490217601-CAZQCV4BK4ESBRTZ09SY/image-asset.jpeg 2015 June 8th Wheelchair Evaluation David M Kanter, MD, 315 464-8668 David M Kanter, MD Appointed 08/04/05 Request Appointment Current Appointments Assistant Professor of Physical Medicine and Rehabilitation Hospital Campus Downtown Community Clinical Section Affiliations Upstate Comprehensive Stroke Center: Neurorehabilitation Clinic/Unit Physical Medicine and Rehabilitation Outpatient Clinic Jacobsen Hall Google Maps & Directions Rm. 310, 175 Elizabeth Blackwell Street Syracuse, NY 13210 315 464-5820 Diseases & Conditions Treated Acute & Chronic Diseases and Conditions in Pediatric Patients Cerebral Palsy Multiple Sclerosis (MS) Muscular Dystrophy (MD) Neuropathy Spasticity Spina Bifida https://www.ezramonet.com/june-26th-g-tube-to-gj-tube-surgery daily 0.75 2015-10-10 https://images.squarespace-cdn.com/content/v1/560571cae4b0dce670622c76/1444212384683-SMLG61BVNQY7A9Z4TXQ4/image-asset.jpeg 2015 June 26th G-Tube to GJ Tube Surgery https://images.squarespace-cdn.com/content/v1/560571cae4b0dce670622c76/1444491269747-LXSF7FFI7NQMUQZPYL13/12119707_10207510677995506_43441439_o.jpg 2015 June 26th G-Tube to GJ Tube Surgery https://www.ezramonet.com/march-8th-g-tube-chapter daily 0.75 2020-09-29 https://images.squarespace-cdn.com/content/v1/560571cae4b0dce670622c76/1444596287195-HS0EIMIDFN9XVNC7TTUD/12112704_10207478105621217_590391873_o.jpg 2015 May 8th G-Tube Chapter https://images.squarespace-cdn.com/content/v1/560571cae4b0dce670622c76/1444596286786-8J8TKWYZ19Q5QRJ9JHP1/12081575_10207478215703969_1875105977_n.jpg 2015 May 8th G-Tube Chapter https://images.squarespace-cdn.com/content/v1/560571cae4b0dce670622c76/1444596286302-6ZVOB7AJM16P86P0MW9I/12071526_10207478212823897_818998517_n.jpg 2015 May 8th G-Tube Chapter https://images.squarespace-cdn.com/content/v1/560571cae4b0dce670622c76/1444596286839-VGGFF3GJPCJ139RAU99Q/12084922_10207478111221357_2085239117_o.jpg 2015 May 8th G-Tube Chapter https://images.squarespace-cdn.com/content/v1/560571cae4b0dce670622c76/1444596286560-88NO4RIQV8I86XZIPUBA/12076534_10207478105421212_40769751_o.jpg 2015 May 8th G-Tube Chapter https://images.squarespace-cdn.com/content/v1/560571cae4b0dce670622c76/1444596286590-U6DZWOOKN10666MYU92S/12081431_10207478104741195_29612498_n.jpg 2015 May 8th G-Tube Chapter https://images.squarespace-cdn.com/content/v1/560571cae4b0dce670622c76/1444596286467-345FXZJJGHD4OH7PP6YX/12077321_10207478215423962_1222380394_n.jpg 2015 May 8th G-Tube Chapter https://images.squarespace-cdn.com/content/v1/560571cae4b0dce670622c76/1444596287038-0GSQ6GBRJ46QRV3AJ6U4/12085263_10207478215223957_1337050711_o.jpg 2015 May 8th G-Tube Chapter https://www.ezramonet.com/2014-june-2nd-achilles-tendon-heel-chord-release daily 0.75 2015-10-11 https://images.squarespace-cdn.com/content/v1/560571cae4b0dce670622c76/1444596832283-HVSS9KM99Y5ZCE0PXXER/12086771_10207478108861298_669973670_n.jpg 2014 June 2nd Achilles Tendon heel Chord release https://images.squarespace-cdn.com/content/v1/560571cae4b0dce670622c76/1444596833696-76VT9A4CFZP3UXU375CZ/0602141310b.jpg 2014 June 2nd Achilles Tendon heel Chord release https://images.squarespace-cdn.com/content/v1/560571cae4b0dce670622c76/1444596834113-678N9BTDK5XT25MTZTVA/0602142053a.jpg 2014 June 2nd Achilles Tendon heel Chord release https://images.squarespace-cdn.com/content/v1/560571cae4b0dce670622c76/1444596835961-TYV8IRAMJL1JI3Q9ANIP/0611141021i.jpg 2014 June 2nd Achilles Tendon heel Chord release https://images.squarespace-cdn.com/content/v1/560571cae4b0dce670622c76/1444596837392-5TFM3XRXN5WILPU6XGQ7/0611141023.jpg 2014 June 2nd Achilles Tendon heel Chord release https://images.squarespace-cdn.com/content/v1/560571cae4b0dce670622c76/1444596840116-HTZ9S1IFRD65MI8MMZJB/0626141133.jpg 2014 June 2nd Achilles Tendon heel Chord release https://images.squarespace-cdn.com/content/v1/560571cae4b0dce670622c76/1444596840233-9KTG1S74KIR2HGQCVYRF/0626141135.jpg 2014 June 2nd Achilles Tendon heel Chord release https://images.squarespace-cdn.com/content/v1/560571cae4b0dce670622c76/1444596846699-97SB5XJBK2M6H4KS1TIW/0629141834.jpg 2014 June 2nd Achilles Tendon heel Chord release https://images.squarespace-cdn.com/content/v1/560571cae4b0dce670622c76/1444596841020-QAVIHHRKOWVOV0AH3ITM/ATT_1405017622608_photo+3.JPG 2014 June 2nd Achilles Tendon heel Chord release https://www.ezramonet.com/september-3rd-make-a-wish-star-party daily 0.75 2023-04-22 https://images.squarespace-cdn.com/content/v1/560571cae4b0dce670622c76/1444582439543-2QTNAYJ0SQNJ77WHXCVZ/11990155_10207269527046883_1208047918_o.jpg 2015 September 3rd Make A Wish Star Party and more https://images.squarespace-cdn.com/content/v1/560571cae4b0dce670622c76/1444582438813-H69QAC8B7AXSYCUEU6GW/11949692_10207269711971506_393873150_n.jpg 2015 September 3rd Make A Wish Star Party and more https://images.squarespace-cdn.com/content/v1/560571cae4b0dce670622c76/1444582439323-VW09NAPPFDB1L2H4E44W/11973720_10207269410043958_2064409758_o.jpg 2015 September 3rd Make A Wish Star Party and more https://images.squarespace-cdn.com/content/v1/560571cae4b0dce670622c76/1444582439302-FC5BZQQH3IN7K1SGQXRD/11984427_10207261593048538_13479565_o.jpg 2015 September 3rd Make A Wish Star Party and more https://images.squarespace-cdn.com/content/v1/560571cae4b0dce670622c76/1444582439092-X6K6RJIG6R4G8YFY6DUU/11982475_10207261592808532_2004638161_o.jpg 2015 September 3rd Make A Wish Star Party and more https://images.squarespace-cdn.com/content/v1/560571cae4b0dce670622c76/1444618920226-GHMPCU65LKB5S68ZKOYR/12124412_10207511422214111_469174478_o.jpg 2015 September 3rd Make A Wish Star Party and more https://images.squarespace-cdn.com/content/v1/560571cae4b0dce670622c76/1444618920410-1CKK4IDGPLINTD5SC29U/12162529_10207511422414116_1258171562_o.jpg 2015 September 3rd Make A Wish Star Party and more https://www.ezramonet.com/october-8th-hannah-has-emergency-surgery daily 0.75 2015-10-11 https://images.squarespace-cdn.com/content/v1/560571cae4b0dce670622c76/1444595663344-YC465DD8VCL45DBTN1Q3/12124551_10207498632614379_1269315580_o.jpg 2015 October 8th Hannah has emergency surgery Heading into surgery with her Surgery Build A Bear from her Surgeon... His name is Zan (meaning providing support) https://www.ezramonet.com/december daily 0.75 2016-02-27 https://www.ezramonet.com/october-15th-pallitive daily 0.75 2016-02-27 https://www.ezramonet.com/januare-26th daily 0.75 2016-02-27 https://www.ezramonet.com/october-10th daily 0.75 2016-02-27 https://www.ezramonet.com/new-page daily 0.75 2016-03-01 https://www.ezramonet.com/new-page-1 daily 0.75 2016-03-01 https://www.ezramonet.com/march-23rd-orthodontist daily 0.75 2016-06-23 https://images.squarespace-cdn.com/content/v1/560571cae4b0dce670622c76/1466714084023-DLWQ73JHLR98NIMMFT3A/image-asset.jpeg 2015 March 23rd Orthodontist https://www.ezramonet.com/2016-may-20th-npo-except-water daily 0.75 2016-06-23 https://images.squarespace-cdn.com/content/v1/560571cae4b0dce670622c76/1466720500504-J0KE3JL4BXVHQ7CR8I45/image-asset.jpeg 2016 May 20th NPO Except Water breakfast, lunch, and dinner SNOW https://www.ezramonet.com/2016-march-30-feeding-tube-crisis daily 0.75 2016-06-23 https://images.squarespace-cdn.com/content/v1/560571cae4b0dce670622c76/1466716832004-F7EBS3XEUEMPUT77S4G3/12932633_10208738546971463_6489415859074540251_n.jpg 2016 March 30 Feeding Tube Crisis! https://images.squarespace-cdn.com/content/v1/560571cae4b0dce670622c76/1466716832856-2P4EPP9R04WXIKHHLC7U/13006723_10208879178447162_6342337060240294005_n.jpg 2016 March 30 Feeding Tube Crisis! https://images.squarespace-cdn.com/content/v1/560571cae4b0dce670622c76/1466716832479-0DFQ7AURVSTU1H4SC52K/12994418_10208879178687168_7342396704370451434_n.jpg 2016 March 30 Feeding Tube Crisis! https://images.squarespace-cdn.com/content/v1/560571cae4b0dce670622c76/1466716831973-VMVAP8UCLV32NHLZC7HU/12986922_10208885890334955_1249848338305376405_n.jpg 2016 March 30 Feeding Tube Crisis! https://images.squarespace-cdn.com/content/v1/560571cae4b0dce670622c76/1466716832360-44FGODNWERPI457OJPIU/12990916_10208879181807246_4067919065510191634_n.jpg 2016 March 30 Feeding Tube Crisis! https://images.squarespace-cdn.com/content/v1/560571cae4b0dce670622c76/1466717109799-CYNSG5OUWMM9G0CJC8KK/13043795_10201410156251096_4266456131677845722_n.jpg 2016 March 30 Feeding Tube Crisis! https://images.squarespace-cdn.com/content/v1/560571cae4b0dce670622c76/1466716833207-HPT7QSSD79OS1BNY5CUZ/13043380_10208879179607191_8342339847153600826_n.jpg 2016 March 30 Feeding Tube Crisis! https://images.squarespace-cdn.com/content/v1/560571cae4b0dce670622c76/1466716833100-VD1H07438F4QHKD5XA08/13015554_10208879179367185_6340837037577278716_n.jpg 2016 March 30 Feeding Tube Crisis! https://images.squarespace-cdn.com/content/v1/560571cae4b0dce670622c76/1466716832826-SUT7JRZFCRM0OUXQWXAT/13007309_10208879182567265_6893081230706903273_n.jpg 2016 March 30 Feeding Tube Crisis! https://www.ezramonet.com/today-marks-5-years-since-we-received-the-diagnosis daily 0.75 2019-12-03 https://images.squarespace-cdn.com/content/v1/560571cae4b0dce670622c76/1575379011520-ZN04Z9HYQOEX5YBD3DO0/IMG_1779.jpeg Today marks 5 years since we received the diagnosis we are now a Senior in her last year of school https://images.squarespace-cdn.com/content/v1/560571cae4b0dce670622c76/1575378962846-MOJLY7VTIRXMYP7Y7QNG/IMG_1350.jpeg Today marks 5 years since we received the diagnosis https://images.squarespace-cdn.com/content/v1/560571cae4b0dce670622c76/1575379102535-NMZHQ36CMSL437T7YI0K/IMG_1833.jpeg Today marks 5 years since we received the diagnosis Happy to say that the feeding tube is a thing of the past and this girl eats food! All kinds of food! She's thriving and communicating and to think we'd ever get to this point it purely a blessing! 4 years on a feeding tube and nothing by mouth to now - She eats everything! When we first received the diagnosis I wasn't sure where the future would take us. Now I have a beautiful smart happy kiddo who loves to learn and be silly and the 22 different doctors are done. She has 2 and that's all we need. She'll be 18 in 5 short months and I couldn't be more proud of the young woman she has become