Baldwinsville, Ny
USA

315-802-8202

THE PURPOSE OF MY BLOG IS TO FIND OTHERS OUT THERE SIMILAR TO OUR DAUGHTER'S CONDITION.  TO HAVE OUR STORY BE HEARD AND SPREAD AROUND. TO GET GUIDANCE, MEET NEW PEOPLE, A VIRTUAL COMMUNITY OF HOPE! WE'RE HOLDING ON TO THE POSSIBILITIES! LET YOUR VOICES BE HEARD. EVEN IF IT'S JUST A HELLO 

2016 March 30 Feeding Tube Crisis!

Beginning March 30, Hannah was experiencing severe upper quadrant pain, and was rushed to the children's emergency room. We thought it had something to do with her feeding tube. After several hours, and several test, and blood work, they send her home with no answers. Days go by, and Hannah begins to be unable to walk, and hunched over with pain so unbearable she could hardly get in and out of bed, and at this time there is a huge bulge coming out of her stomach where her feeding tube is, so I call her doctor, and email them a picture. They tell me what to do, and tell me to push it back in. I somehow have a feeling that this all seems so wrong, and that Hannah needs to be at the emergency room. The day turns to night, and the situation only grew worse. The next morning turned to afternoon, and now the situation had gone to serious and we had to call 911 and have an ambulance come. Like I said since the very first emergency room visit, mother's intuition never lies. If only doctors would listen to US more often our children wouldn't have to suffer as much. The end result was, Hannah ended up hospitalized, and in surgery, and with a new feeding tube. A infection, about 12 weeks of wound care, and did you know your stomach regenerates every 4 days. So even though this balloon ripped her insides of her stomach she healed rather fast! Interesting facts