Baldwinsville, Ny
USA

315-802-8202

THE PURPOSE OF MY BLOG IS TO FIND OTHERS OUT THERE SIMILAR TO OUR DAUGHTER'S CONDITION.  TO HAVE OUR STORY BE HEARD AND SPREAD AROUND. TO GET GUIDANCE, MEET NEW PEOPLE, A VIRTUAL COMMUNITY OF HOPE! WE'RE HOLDING ON TO THE POSSIBILITIES! LET YOUR VOICES BE HEARD. EVEN IF IT'S JUST A HELLO 

A Mother's Journey~Ezra Monet

Another admission to the Hospital on the 4th of July

Christina Manning

So Hannah wakes up with the balloon to her feeding tube once again at the opening of her port access about to perforate through her stomach yet once again. While in the process of getting ahold of on-call, and that entire process, there must have been a flaw or something odd wrong with this tube because thank goodness we have the medical cams always recording, Hannah stands up, and next you hear this loud piercing scream. Yep tube falls right out and stomach contents pouring all over the floor... Off to the hospital we go, and admitted she was. AGAIN We noticed she ends up in the hospital having these tube emergencies every 3 1/2 months. So exhausting 

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