Baldwinsville, Ny
USA

315-802-8202

THE PURPOSE OF MY BLOG IS TO FIND OTHERS OUT THERE SIMILAR TO OUR DAUGHTER'S CONDITION.  TO HAVE OUR STORY BE HEARD AND SPREAD AROUND. TO GET GUIDANCE, MEET NEW PEOPLE, A VIRTUAL COMMUNITY OF HOPE! WE'RE HOLDING ON TO THE POSSIBILITIES! LET YOUR VOICES BE HEARD. EVEN IF IT'S JUST A HELLO 

Our Daughter makes headlines

A Mother's Journey~Ezra Monet

Our Daughter makes headlines

Christina Manning

Today was a very exciting day for us all! Seeing Our daughter's story on the cover of the Washington Post, what a proud, yet melancholy moment. I mean it's not like she just won the nobel piece prize, or ran a 5k! She's in the paper because she has such a RARE disease that no one else in the entire world has it, and doctors are left speechless! So it leaves us with mixed emotions. Then by the end of the day, Hannah made it even bigger, her story got picked up by another website, the WAPO - see my next entry for more info~