Baldwinsville, Ny
USA

315-802-8202

THE PURPOSE OF MY BLOG IS TO FIND OTHERS OUT THERE SIMILAR TO OUR DAUGHTER'S CONDITION.  TO HAVE OUR STORY BE HEARD AND SPREAD AROUND. TO GET GUIDANCE, MEET NEW PEOPLE, A VIRTUAL COMMUNITY OF HOPE! WE'RE HOLDING ON TO THE POSSIBILITIES! LET YOUR VOICES BE HEARD. EVEN IF IT'S JUST A HELLO 

A Mother's Journey~Ezra Monet

Hannah has emergency surgery

Christina Manning

This morning the unexpected happened! Hannah's G-J Tube came out, and she was rushed into emergency surgery to have another one placed. However surgery for Hannah isn't just simplified. Anytime she goes into surgery, she has to be intubated and has to be surrounded by a team of doctors because she always has complications! There's always a risk.  She pulled through like a champ though, and everything is working great, and she was able to come home that very evening! The entire process surely was scary though! She has only has this for nearly 5 months, and to think we have already crossed this bridge so soon, and she is going to have this for life. I'm terrified!   She did however get an amazing Build A Bear for going into surgery! The wonderful thing our childrens hospital does is for each surgery she gets a Build A Bear. So Hannah has quite the collection let's just say lol